Hello everyone. This is the patient's daughter checking in again.
I thought I would provide some new information. Yesterday, we met with the
doctors at EuroMed. My mom, Devra and I sat around a little circular table with
Wanda and the head doctors to discuss her treatment plan. We all agreed that
the biggest problem right now is the enormous amount of swelling my mom is
experiencing. We are guessing that she has gained around thirty pounds of water
weight. To put it in perspective, that is over five big bags of sugar she has
to carry every time she moves around. Of course, she approaches it with a sense
of humor, calling herself Jabba-the-Hutt. We’ve had a few giggles over
that one (especially when she kept saying it in front of the doctors and they
couldn’t respond in fear of insulting her!) Anyway, the doctor’s seemed very
optimistic. Her white blood cell count has gone up and her lung may be ready to
have the catheter removed. We will be taking the necessary steps in the next
few weeks to finally get that darn thing out of her! At the end of the meeting,
it was concluded that my mom will receive IV Albumin. Her natural levels are
low, which is known to cause severe swelling and shortness of breath. We are
hoping this will allow her body to drain some of the excess fluid that is
storing mainly in her abdomen and causing an extremely uncomfortable amount of
pressure. Next step (on Thursday after IPT) is giving her a diuretic. Then we
move onto the IV vitamin C and pray that her lung will continue to drain
nothing. Then we can do chest x-rays and remove the tube!
As I said, we are taking this moment by moment. My mom was on phone
calls with her clients for three hours yesterday. I love how strong and
confident she automatically becomes when she is helping other people. I am
inspired by her unfailing ability to find energy and positivity when it comes
to her work. After her phone calls she talked energetically with the doctors
for another hour. So it was not a huge surprise that by the time we got home,
she was exhausted and in pain. She spent the rest of the day on the couch while
Devra took care of calling the hospital to check how long the chest
x-ray/catheter removal process would take. She made my mom comfortable, got her
everything she needed, kept things neat and took care of Butters. All the while
she managed to remain relaxed and cheerful. It is so wonderful to have her out
here.
This morning was hard. We headed to the clinic early because my mom
wanted oxygen. She was feeling very short of breath. With all that fluid
squeezing up against her diaphragm and lungs, this makes some sense. The
doctors arranged for her to receive oxygen at home. We all know this sounds
bad, but it really is just a precautionary measure to provide my mom with more
comfort while they work on reducing her swelling. We were joking yesterday that
my mom needs that giant juicer they used to squeeze Scarlet back to normal in
Charlie and the Chocolate Factory! Unfortunately EuroMed doesn’t seem to have
this contraption in stock right now.
My mom plans on blogging again very soon. She would have done it
yesterday, but we all agreed that this blog is for her and she shouldn’t
feel the slightest bit of pressure to write if she is not up to it. For
now, I will try my best to fill in the gaps when I can. My love to all the friends
and family who follow this crazy cancer adventure. As I said before, your
support means the world to both of us.
Dear Colleen,
ReplyDeleteThis is Jane, Steve’s colleague. I heard your Crazy Cancer Adventure a couple of weeks ago from Steve. I felt so bad that I was so out of touch and clueless... I decided to read all your blogs from the beginning (so I have some idea on what you guys are going through) before I reach out to you. I was so touched by your courage, openness, optimism, wit, and humor. You are a brave solder fighting this crazy war in the front line, bring us stories, so we can all learn from you. Bill, Stephanie, and I will keep you and your family in our prayers. We wish you the very best.
Jane
Maggie,
ReplyDeleteThank you for keeping us up to date with your Mom. I check it daily. I wish there was something I could do. I would gladly take your moms place. I will continue to pray and light my candles. Love is in my heart for you all. So glad that the three of you are woking so well together. Aunt Geri
Margaret..you do your mother proud!! Thanks for keeping us updated. I think of Colleen multiple times a day and hole she is receiving my good vibes! Give yourself and devra big hugs and take care of yourselves!
ReplyDeleteDear Margaret,
ReplyDeleteThank you for all you are doing caring for your mother and keeping us informed. Joseph, Blossom; a friend from Carleton, Uncle Bill, and Stephen are coming for a cookout this evening.
Love and Hugs from us all,
Grandmama.